Dad adopts five children notices that one of them looks strange ben carpenter understands that everyone deserves to have a home and a family that they can call their own that’s why he adopts the babies that nobody wants however sometimes things don’t go as planned his heart was broken when something unexpected happened this is an inspiring story that’ll show
You how a man gave a home to children that not many want to foster in his homes it’s an example of kindness and resistance ben carpenter has given these special children a place to call home after dedicating his life to assisting children in need a selfless single man has adopted his sixth child from a foster family ben carpenter 37 of huddersfield west
Yorkshire became a father for the first time when he was 21 years old when he adopted his first child he became the world’s youngest gay man to do so since then he has adopted a total of five children with special needs having embarked on a mission to assist the most vulnerable children in society ben brought home his sixth adopted child lewis who was two at the time in april of last year after taking some time to
Grieve following the devastating death of his fifth child teddy in december of the previous year with autism jack now 14 years old is the first child of ben and his wife lisa he also has three other children ruby who is 11 years old and has complicated needs lily who is 9 years old and is severely deaf and joseph who is 6 years old and has down syndrome dear daughter billy ben’s sixth adopted child was
Named teddy who tragically went away on november 5th 2019. teddy suffered from a rare genetic disease known as cornelia delange syndrome and he died from sepsis rather than as a result of his extensive medical needs afterwards the devoted father took a break from adoption to give himself the opportunity to grieve the tragic death of his son before embarking on his sixth adoption journey ben welcomed his sixth
And most recent adopted child lewis who is now two years old and has cerebral palsy as well as being blind into his household in april 2020 ben who previously worked in the care sector before embarking on his adoption adventure says he has always known that he wanted to start a family but that he did not necessarily want to be the biological father he went on to say i’ve always been clear about what i wanted i never wanted to be
A biological father since being a parent entails so much more than just providing for your children i wish to assist children who were the most vulnerable and in desperate need of a loving and caring home and i chose to do it through foster care at such a young age i felt i had a lot to prove i needed to demonstrate to these children that i was mature and capable of providing them with what they required the advantage of adoption is
That you may choose the gender of the child which is something you cannot do when pregnant for the sake of simplicity i began by selecting two boys and two girls since i believed it would be the best match i was fortunate enough to be accepted and matched with my children jack and ruby i was then asked if i would be interested in adopting my biological daughter’s sister which i readily agreed to
So i had two daughters and one son and i decided to adopt another son to bring the gender balance back to even consequently i applied for a child with down syndrome and within three days i was matched with a baby boy who had recently been born with a disability ben had been reading a magazine article when he came across the next youngster who will become a member of his family a few years later and this is how he met him
He claims that he read about a seriously challenged youngster named teddy who was in desperate need of a family and that he contacted the family because he believed he could be of assistance ben went on to say there were numerous chats and visits and it was ultimately determined that we would make a wonderful fit and the adoption was granted devastated after that i had my five children and i
Was overjoyed they were all doing fantastically well teddy on the other hand regrettably went suddenly in 2019 as a result of sepsis i was saddened and i felt guilty for a time because i couldn’t stop myself from thinking whether there was anything i could have done to prevent it from happening prior to teddy’s death i had been contacted to see if i would be interested in adopting another child it
Was a young boy who had severe cognitive difficulties i had agreed but after teddy died away i realized that i needed to put the process on weight to allow myself to grieve properly toward the beginning of 2020 i realized that this little child also needed me and that i may be his last resort so i contacted the social worker and restarted the adoption process lewis moved back home to be with us in
April 2020 and he has only grown in strength since then all of ben’s children he claims have wonderful sibling connections and his home is filled with love and laughter which has helped them develop he went on to say i had always dreamed of having a large family and i’m overjoyed that my children are part of it as well that they have a large number of siblings i often sit and envision them all as
Guests at one another’s wedding receptions they’re all extremely understanding of one another’s needs and i’m really pleased with myself for having produced a joyful loving and stable atmosphere for them to grow up in in the same way that i have altered their lives they have altered mine as well and i would never rule out having another child in the future ben always believed that being a father was about much more than just being a
Biological dad and he demonstrated this with his loving family who took care of lily jack joseph and ruby cornelia delange syndrome is a rare genetic abnormality that affects one in every ten thousand to thirty thousand infants each year according to the national institutes of health there are various symptoms associated with the illness each of which has a different severity level these can include the following growth is slowed both before
And after conception disabilities intellectuals delay in growth and development behaviors that are autistic and or self-destructive abnormalities of the arms and hands in terms of skeleton issues with the digestive system hirsutism is a type of mental illness excess hair growth deafness and hard of hearing myopia is a condition in which one cannot see
Clearly congenital heart defects are a type of congenital heart defect abnormalities of the genital organs seizures are taken place the disorder is caused by a mutation in the nipbl gene and it can be handed off to offspring however new mutations account for 99 of all occurrences of the condition people with cornelia delaying have a normal life expectancy and the vast majority of affected children live into
Their maturity people who suffer from more severe symptoms on the other hand may have their life expectancy fall treatment is carried out by specialists due to the large number of symptoms that must be addressed it’s estimated that one in every 10 000 to 30 000 babies suffer from the corneli-delange syndrome each year what is cornelia delange syndrome and how does it manifest itself
Cdl syndrome is a rare genetic illness that affects practically every physiological system and results in a wide range of physical and cognitive abnormalities in its sufferers the majority of children with this condition are diagnosed at the time of delivery in addition to delange syndrome it is known as amsterdam syndrome brockman de lange syndrome amsterdam dwarf degenerative amstello diminishes typists and bruck delange syndrome among others
Cornelia delange was the first to describe it in 1933 though brockman had written about a similar occurrence in 1915 as well who is at risk of developing cornelia delange syndrome cdl syndrome is an extremely rare condition it is believed that one in every ten thousand to thirty thousand live births is affected by this condition as previously said this may not be
Totally accurate because the illness can go unnoticed when its symptoms are modest or unique in nature it has an effect on both sexes it affects people of all races and ethnicities and can be fatal the majority of patients do not have a history of the illness in their families what causes cdl syndrome and how can it be prevented cdl syndrome is a hereditary illness that affects the female reproductive
System the majority of instances are caused by a mutation in any one of the five genes nipbl smc 1a hdac8 rad21 or smc3 nipbl is the most common these genes code for the proteins that are required for the development of the face and limbs before birth is achieved thirty percent of the cases of cdl syndrome have been evaluated do not have mutations in these five genes
Consequently experts believe that genes other than the ones currently identified may be involved in the process the pattern of inheritance is autosomal dominant which means that a defective gene inherited from one parent can cause disease in the other parent the mutations are frequently sporadic which explains why there may be no documented family history of the disorder in what ways does cdl syndrome manifest
Itself clinically cdl syndrome is characterized by a wide spectrum of symptoms that can range from moderate to severe these manifestations are as follows abnormalities in growth and development including low birth rates delayed growth intellectual disability including learning difficulties and language delays and autism-like syndromes that disrupt socialization and communication can occur
It is possible to have distinguishing facial characteristics such as sonofarous short eyebrows that meet in the middle and upturned nose irregular teeth low set ears and small lips as well as a cleft palate limb abnormalities such as missing arms or forearms undersized hands and feet and clinodactyli are all examples of limb abnormalities in curving of the fifth finger gastroesophageal reflux disease and
Other digestive orders heart abnormalities such as an atrial septal defect or tetralogy of phallit are common in children eye issues such as blephardus inflammation of the eyelid ptosis drooping eyelids and myopia nearsightedness are common what is the procedure for diagnosing cdl syndrome it is possible to make a diagnosis of cdl syndrome based on clinical observations of the syndrome’s
Typical signs and symptoms as determined by a medical professional specialist laboratories may be able to carry out genetic testing for you what is the treatment for cdl syndrome there is no cure for cdl syndrome and the treatment is lifelong and extensive with variations based on individual case the following are examples of treatment treatment in a psychiatric setting for difficulties with behavior or cognition a collaborative effort between the
Child’s parents and the school to develop an individualized education plan to address cognitive and intellectual deficiencies care provided by a multi-disciplinary team of specialists which may include doctors such as cardiologists dentist ophthalmologist audiologist gastroenterologist and orthopedic surgeon based on the specific needs of the child in question thanks for reading.